I got a call this morning from John Hopkins. They agreed to meet with me. I was even able to get into the doctor I wanted to see. They offered one date at one time. That was it. So I have an appointment on January 8 at 8:00 am.
There are several tests they want me to have before I see the specialist. My insurance does not cover out of network physicians and Maryland is absolutely out of network. So it is all out of my pocket. I started a board review of my medical records at my insurance company to see if they will cover the visit (and hopefully the tests). If not, I will have to get them here and send them to John Hopkins for review. I need to have a pulmonary function test, MRI of my thighs, and 6 specific EMG studies. I think it would be best if I could have the EMG studies at JH because I've gathered over the years, they are tough to interpret someone else's work. But it all hinges on my insurance company's flexibility.
I'm pretty excited but it is also daunting. I'm a little afraid what I will learn and I really don't want to go to Maryland in January. But so be it and I'll face it and get it done. I'll keep you posted on what I learn from my insurance. I am thinking of this as a "Merry Christmas" present to me.
That is exciting that you were accepted to John Hopkins and can see the doctor you want. I think you want to know what you are dealing with in your polymocitis and if you are on the right treatment or need more. This is a merry Christmas!
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