Today I saw Dr. D. She is my neurologist here in Utah that helps me coordinate my care and instructions from Johns Hopkins. Sometimes I wonder why keep going because with IBM, there isn't much they can do. But she did check me out and we talked about my recent learning about the Methotrexate shortage. Interesting enough, she already had a meeting with the pharmacist I spoke to last week about getting it in. I did ask for another prescription to take to another pharmacy if necessary.
We discussed another drug she heard was helping some. I will ask about it. My next Myositis stop is the annual conference in September. This year, it is held in San Diego. Mom has offered to go with me which is great. I hope to see Dr. CS there (my Hopkins doctor). I will have a chance to learn more and ask questions which is always great.
Interesting enough, Dr. D has another female IBM patient. She has used my journey to help this other woman with her journey. It is nice to know it is not all for not. Dr. D did mention that comparing us, I am "very mobile". I'll take that as a compliment.
She suggested we meet just annually between my visits with Johns Hopkins. She is easy to reach by phone or email so I guess that will do.
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